Another day Another Doctor!!!!!

13 11 2012

Well, its been a funny past few days and not in a hilarious way!

As you know we had a recent visit to the hand puppet who, at Alistairs request, referred us to Macmillan, from Alistairs point of view to make contact and maybe get some external  support and  from the hand puppets point of view to get him assessed and out of her hair!

Well, things certainly got moving then, although not from Macmillan but from the local St Francis Hospice triage team ( I know it seems like death in a sentence doesn’t it)! I have to say though, what a lovely team of nursing professionals.

We had an hour long meeting with their consultant and their clinical nurse specialist (who turned out to be someone I knew extremely well from a long time ago- synchronicity at its best)! What a pleasure in a most surreal way. They entertained our non regard of all things allopathic very well and the consultant is even trying to get our hand puppet to refer us to the homeopathic hospital in London- good luck with that Vinny- she referred us to the job centre last week!

You can breath a sigh of relief everyone, the hospice don’t want to take Alistair, not even as an out patient. And sadly for us and others like us who tread the wonderful but little understood non mainstream alternative healing path there was no likeminded support group or specialist practitioner that Alistair could natter to. They certainly did make available their family support group which offers as many appointments as you would like with a counsellor, psychologist and or social worker. I grimaced inwardly whilst still retaining the grateful smile at the thought of  Alistair, the Master therapist in the hands of another, I shall go no further, those that know him well will already be bent double with the implausibility of that scenario!

But, how lovely that this resource is there for those who would benefit from it. And the hospice had a professional, caring, supportive feel to it. In fact it was the same place where my lovely late Father in Law from my first marriage died and where Pippin, as a baby, was Christened by his bed side so the visit woke up some old and strangely fond memories for me. In this nearly whole year of the ‘curve ball’ experience, the St Francis Hospice team have been a model of excellence and had we had that support and attention from the start Alistairs journey would have been made a lot easier Im sure.

And you know, I am at pains to make clear that we have  great respect for the work that this charity does and neither of us disrespect what they do. We may wish that they also were able to offer more extensive choice, but, alas they are bound by the medical model . Its quite simply that what they do does not match with the colour of the thread that we are using to weave our tapestry. Although perhaps a couple of shades (not grey) around the periphery may fit (we are on a waiting list for Reiki and Massage for free at the hospice)

We did wonder, after our meeting, what  nurse specialist Chris and consultant Vinny (how lovely that they use first names) made of us two. We wondered if they thought we were a couple of idiots, curtailing Alistairs life span by not taking the offerings that medicine has to offer (a friend of mine is a very lovely Professor of stem cell research and such like, who certainly does think we are ‘fucking idiots’). We wondered if they were, in the quiet of their own minds, righting us off as a couple of loons desperate to find our own holy grail and yet likely to fail. Who knows? Neither of them outwardly showed that and I did feel for the first time in nearly a year that someone was trying to understand us and help us.

We popped into the hand puppet today to pick up the full blood test results, and lo and behold, she is willing to make a special referral to the London Hospital of Homeopathy for Alistair! She didn’t though throw somersaults or ask what on earth we had been doing to help the PSA reading to reduce by a third, but perhaps we expect too much.

These visits have come about because apart from me and one or two others there isn’t really anybody for Alistair to really talk to about the path that he is walking, nobody on a professional level to check in with and I think he was feeling a little alone with it all. Im not sure how the events of the past few days have helped except to reaffirm that if y0u go against the medical model you are really on your own. I think we both feel that we need to start our own support group for people healing from cancer using alternative approaches, so that their voices can be heard, their ideas really be listened to and their results really heralded as confirmation that they are going in the right direction with their healing . Perhaps thats the next step…





Our own Movember update

6 11 2012

Well, Alistair decided not to shave off his lovely beard and moustache to support Movember, he figured that since he already has prostate cancer he could probably raise awareness and keep his lovely face hair in tact!

Thats not to say that raising awareness and the whole Movember thing isn’t great although of course, us two are bound to be a little miffed at the narrow minded, non alternative, non holistic use of the money raised but that’s probably enough said on that (oh my soap box just appeared for me to stand on)!

I tell you what though, there is nothing like having cancer or the person you love having cancer to raise your own awareness! Alistair and I both said the other day that it’s a real shame we didn’t know years ago what we know today, but then even if we did we may not have had the motivation to keep us committed to our chosen ‘life giving eating and living’ path. I know I have mentioned this in previous posts quite a lot but it keeps coming up, people just seem to want the quick fix, the antibiotic, the supplement, the prescription form the hand puppet. Talk to people about changing their dietary intake, removing dairy and sugar, reducing meat and increasing their fresh vegetable consumption and they sort of drift off into a world of reasons why that couldn’t possibly happen!

So our Movember is about raising your awareness to the fact that what you eat and how much or how little you eat really really does play a part in your health and well-being. The lifestyle choices you make will also play a part. Food and lifestyle play a massive part in whether or not your cells will mutate into cancer cells. Believe me, you have so much power to improve your health and prevent yourself being a 1:3 statistic. Think about that, 1 in 3 people will be diagnosed with cancer, that is a shocking statistic.

As you well know by now, Alistair and I have radically changed our dietary intake and our lifestyle. We are now 11 months into living with cancer and 10 months into vegetarian, whole food cooking and eating. And how are we doing?

Well we both feel really well which is a good starting point! And we have been virus free since last December which is another good thing. But the best thing so far is that Alistair’s latest blood tests have shown a significant decrease in the Prostate Specific Antigen (PSA).His PSA is now where it was last year when we first saw his consultant last September. It is still raised but certainly shifting in the right direction. We are attributing this to the miriad of things that we are doing on a daily basis as well as continuing with the Budwig protocol and some of the Pffiefer protocol that uses natural herbal remedies for prostate cancer. Good news for us this Movember and what we both hope is that our story can keep encouraging other people to  make the changes they need to in order to prevent or heal cancerous cells or any other health related condition.

Don’t be a 1 in 3 (anybody remember that great UB40 song- I know slightly different statistic but you see where I’m coming from)! In the words of the great Mahatma Ghandi, “Be the change you want to see”.